What is the CPRCoM?
The CPRCoM is a collaboration of researchers and health professionals within the State of Michigan who are establishing a Cerebral Palsy Research Registry. The goal of CPRCoM is to promote and accelerate cerebral palsy (CP) research aimed at measuring prevention strategies, treatment outcomes, and maximizing quality of life and community participation for persons with CP. United Cerebral Palsy of Michigan and the Ann Arbor Center for Independent Living are community partners of the CPRCoM.
Who can participate in the CPRCoM?
The only criterion for participating in this registry is that you/your family member must have a medical diagnosis of CP.
What does it mean to be a member of the CPRCoM?
Joining the CPRCoM is strictly voluntary and confidential, and will not enroll you or your family member in a study. Rather registration indicates that you are willing to be contacted by consortium researchers if a study for which you qualify is recruiting participants. Registrants can also indicate a desire to receive recent research findings, community resources and other timely information related to CP through the dissemination component of the registry. Participation can be withdrawn at any time at the request of you/your family.
Where can I learn more?
You may contact the CPRCoM office by phone (734)-936-6023 or e-mail at PMR-CPRegistry@med.umich.edu
Where can I register with the CPRCoM?
You can either contact the CPRCoM office by phone or email or you may also register online via the following link: The Cerebral Palsy Research Consortium of Michigan
The CPRCoM has been approved by the University of Michigan’s Institutional Review Board (IRB HUM00034648).